Kidney Support Networ
The Kidney Support Network provides quality support services, information and referrals, accommodation service, equipment service and more. CKSN is one of KSN’s support groups. The Childhood Kidney Support Network is a branch of the Kidney Support Network.
Kidney Health Australia
The focus of Kidney Health Australia is to provide information and improve kidney health outcomes leading to substantial improvements to the quality of life for people with kidney disease.
Renal Resource Centre
The Renal Resource Centre provides renal patients with information and educational material to assist them in managing the effects of renal disease on their lifestyle.
Book: There’s No Such Thing as a Silly Question
This book was developed by parents and health professionals from interACT, a group committed to helping parents, caregivers and service providers work together for the benefit of children with additional needs, from birth to 18 years and their families.
The Kidney Thing Blog
Jana Christy wrote and drew an illustrated blog/webcomic about her experience donating a kidney to her brother. It’s called The Kidney Thing. The comic was created as the process was ongoing, but now it’s all successfully over, so you can read the whole thing.
It was a grueling and emotional process and Jana used the webcomic as a way to let friends and family know what was going on, but also ended up connecting with other kidney donors and recipients because of it. The hope is that beyond entertainment, The Kidney Thing will inspire other people to come forth as donors when friends and family members find themselves in the dire position of requiring the procedure. Jana’s put them all in order and ready to read.
Click here to view Jana’s blog.
Kidney Kids New Zealand
Kidney Kids of NZ is a parent driven organisation set up to meet the needs of children, and the families of children, who have kidney disorders.
CLAN is an acronym for Caring & Living As Neighbours. CLAN is an Australian-based, not-for-profit, non-governmental organisation, approved by AusAID for Overseas Aid Gift Deductibility Status and the Australian Taxation Office for Tax Deductibility Status. CLAN is dedicated to the dream that all children living with chronic health conditions in resource-poor countries of the world will enjoy a quality of life on par with that of their neighbours in wealthier countries.
YAP Space is Kidney Health Australia’s social networking area for Australia’s kidney community – where Aussies and others worldwide with a connection to CKD, can meet, chat, share and support each other. We hope this may alleviate some isolation felt when living with a chronic condition.
The National Kidney Foundation USA
The National Kidney Foundation USA, a major voluntary nonprofit health organisation, is dedicated to preventing kidney and urinary tract diseases, improving the health and well-being of individuals and families affected by kidney disease and increasing the availability of all organs for transplantation.
American Association of Kidney Patients USA
The American Association of Kidney Patients (AAKP) is a national non-profit organisation founded by kidney patients for kidney patients to educate and improve the health and well-being of chronic kidney disease (CKD) patients, those on haemodialysis, peritoneal dialysis and transplant recipients.
Transplant Living USA
Transplant Living USA is a project of the United Network for Organ Sharing (UNOS), a nonprofit organisation that maintains the national Organ Procurement and Transplantation Network (OPTN) under contract with the Health Resources and Services Administration of the U.S. Department of Health and Human Services. Their mission is to advance organ availability and transplantation by uniting and supporting its communities for the benefit of patients through education, technology and policy development.
Starlight Children’s Foundation Australia
Starlight programs are delivered both in and out of hospital, providing positive distraction to the lives of seriously ill and hospitalised children, and their families, throughout Australia.